Participant Flow diagram

Carer inclusion criteria

  • 18 years old or above;
  • Able to communicate in English;
  • Current or previous family carer of a person with dementia diagnosed in the previous 12 months;
  • Has a first-degree relationship (spouse/partner, sibling, son or daughter) with a person with dementia; OR must have a close personal relationship with a person with dementia, as agreed by the care recipient;
  • Has capacity to give informed consent to participate;
  • Has access to a home computer/laptop, ipad/tablet or mobile phone with equivalent internet connectivity;
  • Willing and able to participate in recorded interviews and events via online video call software e.g. Zoom, MS Teams. There may be the option of telephone or face-to-face interviews at a later date.

Staff inclusion criteria

  • Main work role is caring for people living with dementia;
  • Willing and able, and supported by their organisations to participate in recorded interviews and EBCD events via online video call software e.g. Zoom, MS Teams.


Research Ethics was approved by London-Surrey Borders REC (ref: 21/PR/1353).

IRAS 297595/CPMS 50756

Research Sites

3 NHS sites took part in this work package:

  1. Norfolk & Suffolk NHS Foundation Trust (NSFT)

     PI: Chris Fox. Email:

  1. Bradford District Care NHS Foundation Trust (BDCT)

     PI: Chris North. Email:

  1. Nottinghamshire Healthcare NHS Foundation Trust (Nottshc)

     PI: Kathryn Styles. Email:

Work Package 1

Developing the ‘CareCoach Intervention package’

More detail

Work Package 2

Understanding Implementation

More detail

Work Package 3

Feasibility Trial

More detail

Work Package 4

Randomised controlled trial with internal pilot to evaluate CareCoach

More detail